Europe Rare Disease Summit 2023

Hosted by Bamberg Health

Event Hybrid in Madrid MAP

Venue: Hotel Ilunion Pio XII, Madrid
Address: Av. de Pío XII, 77, 28016 Madrid
Topics: National Plans, Government Iniciatives, Research Networks, Orphan Drugs, Rare Diseases Specific Registry, Gene Therapies, Viral Vector & mRNA Technologies

The European Rare Disease Summit will bring together local and European government authorities, members of the European Commission and the European Parliament, large public and private hospital groups, research centers, pharmaceutical and patient associations, regulatory agencies and scientific societies and healthcare professionals from across Europe.

Through a variety of panels and stand-alone presentations by industry leaders, the objective of the Summit is to uncover the key trends and topics relating to diagnostics and treatments for Rare Diseases in Europe, as well as the challenges to timely and equitable access to orphan drugs, and European initiatives for research and innovation programs to improve the lives of patients with rare diseases.

Topics to be covered:

• Government Plans
• Access & Financing
• Clinical Research and Innovation
• Artificial Intelligence and Data
• Social & Patient

Speakers


  • Alexander NatzEuropean Confederation of Pharmaceutical Entrepreneurs (EUCOPE)Secretary General
    Alexander Natz European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) Secretary General
  • Josep Samitier MartíInstitute for Bioengineering of Catalonia (IBEC), European project THERACATDirector
    Josep Samitier Martí Institute for Bioengineering of Catalonia (IBEC), European project THERACAT Director

Sessions


  • 1 Welcome and Opening Remarks -
    0 speakers
    The expected duration is 15 minutes
    The language of this session is English
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  • 2 1st Panel: National Plans, Policies and Government Initiatives Against Rare Diseases -
    0 speakers
    The expected duration is 45 minutes
    The language of this session is English
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  • 3 2nd Panel: Addressing Rare Diseases: Research Networks and Reference Centres -
    0 speakers
    The expected duration is 2 months and 22 days
    The language of this session is English
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  • 4 COFFEE BREAK & NETWORKING -
    0 speakers
    The expected duration is 30 minutes
    The language of this session is English
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  • 5 3rd Panel: The Role of the Pharmaceutical and Biotechnology Industries -
    1 speakers
    • Alexander NatzEuropean Confederation of Pharmaceutical Entrepreneurs (EUCOPE)Secretary General
      Alexander Natz European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) Secretary General
    The expected duration is 45 minutes
    The language of this session is English
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  • 6 4th Panel: Innovation and Access to Orphan Drugs: Challenges and Opportunities -
    0 speakers
    The expected duration is 45 minutes
    The language of this session is English
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  • 7 LUNCH AND NETWORKING -
    0 speakers
    The expected duration is 1 hour
    The language of this session is English
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  • 8 The Role of AI & Data in Overcoming the Challenges of Rare Diseases Specific Registry and Diagnostic -
    1 speakers
    • Josep Samitier MartíInstitute for Bioengineering of Catalonia (IBEC), European project THERACATDirector
      Josep Samitier Martí Institute for Bioengineering of Catalonia (IBEC), European project THERACAT Director
    The expected duration is 45 minutes
    The language of this session is English
    ADD TO CALENDAR
  • 9 6th Panel: Advances in Rare Disease Diagnosis and Treatment: Gene Therapies -
    0 speakers
    The expected duration is 45 minutes
    The language of this session is English
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  • 10 Viral Vector & mRNA Technologies: Implementation and Future Development Against Rare Diseases -
    0 speakers
    The expected duration is 2 hours and 45 minutes
    The language of this session is English
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  • 11 8th Panel: The Patient's Voice as a Driver of Access and Drug Approvals -
    0 speakers
    The expected duration is 45 minutes
    The language of this session is English
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  • 12 Closing Remarks -
    0 speakers
    The expected duration is 15 minutes
    The language of this session is English
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Target Audience


  • Government officials
    25%
  • Public Hospital Groups
    30%
  • Private Hospital Groups
    15%
  • Research centres
    10%
  • Regulatory agencies
    20%

Event attendees


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